July 22, 2012

I think it's a little ridiculous that I have to watch what I say around my mom. She's not sick, I am. But I don't see her watching what she says. She only thinks about herself and her own feelings. I'm done. They act like this isn't bothering me but it is more than they know. Because god forbid I upset her. She can't face the truth, so she hides from it and makes everyone else hid it from her. I just can't do this anymore.

July 11, 2012

I'm the type of girl who will fall for a guy she barely
knows; who will listen to a love song & see his face; who
will look for him wherever she goes. I’m the type of girl who
doesn't get over things easily; who will beat herself up when
someone doesn't love her back; who will cry herself to sleep because
she feels she's not good enough. But I’m also the type of girl who's
strong; who can cry her eyes out then forbid them to come back the
next morning; who will blast some old pop song & sing at the top of her
lungs cause she feels like it; who will be no one but herself.

July 10, 2012

Hi Wendy,

So I got the information for my injections on Friday. I just really want to get it started so I can get it over with. Friday was also one month since I was diagnosed.

We aren't telling my grandparents about it because he doesn't want them worrying. But for some reason they still know about my doctors appointments. It makes me so mad because all my grandma keeps saying is "you're fine its just stress". I just want to scream and yell "its not stress its ms!!" But I cant, so I just sit back and keep my mouth shut.

Ive been thinking about doing something different, trying to be a normal teenager. But then i think about it and I'm not a teenager I'm an adult. Anyway i was thinking about doing something that would be just for me like getting my belly button pierced or a small tattoo. But the more i keep thinking about it, i feel like I'm rushing into this. I don't want to do something just because I'm upset. I'm trying to justify me getting either of those things. But I'm the only one questioning it, my aunts are all for it. They say i need to do something crazy for once and just not think about it. But i don't know if i can. 

I think that's all for now. Thanks again for listening you always do.

Jess

July 05, 2012

That moment when you see your referral and under the reason it no longer says "numbness, tingly sensations" because it has been replaced with "multiple sclerosis". It's that moment when things hit you hard again. That realization that this is not a bad dream.

July 02, 2012

Hi Wendy,

I hate this. It's official I have MS. Everyone's treading so lightly around me like I may break. My mom is actually being nice which kind of hurts, ironically enough. Things are changing so fast, I really wish this wasn't happening. I wish it would just go away. I keep thinking if only I could have just kept pushing all my symptoms away, I wouldn't be in this place where I am now. I'm hating life. I'm definitely not looking forward to the injections I'm going to have to take.

I've been to a specialist who has confirmed that I have MS. My right arm is also weaker than my left due to the flare up I had. Oh did I tell you that I've had MS for at least 5 years now. Yup, doctor confirmed that too. I failed my memory test, which means I have to go see yet another specialist that deals with cognitive issues. That might be interesting, I guess I'll see.

I'm trying really hard to hold it together and put on a smile. But parts of me just want to break down and sometimes I do. When the realization hits me that its true and it's not some dream. That's when it gets me the most.  It's a big change bigger than I thought it would be anyway. I mean I've known this was always a possibility but somehow I didn't think it would ever really happen. I guess. I'm trying to be positive but that doesn't always work.

I just really wish people could be real with me. I'm so sick of everyone's" oh it could be worse" or "you're going to be fine" speeches. It's kind of like everyone just wants me to be okay with this but I can't, I need time. I really don't want to talk to my mom about it, she's still got that "you're going to be fine, don't worry about it" attitude. But how do you not worry about something that's happening to you. And she's still lying and hiding stuff, no surprise there really.

My friends, well let's just say I can't really handle them right now. They complain about the stupidest stuff. I wish I had their problems. Their stupid little problems. I feel like this is so unfair. I really wish my biggest problem was not getting an invite to a party or getting drunk and not remembering. Or any of the other stuff things they are worrying back. If I could go back, I wouldn't complain so much about the small stuff.

Oh and I kind of met someone, online but still it's something. I'm not sure if it will go anywhere but for the first time in a while I feel completely at ease and comfortable with a guy. It's too bad he's five hours away, we are going to try and meet up. Hopefully that will happen. But he's sweet and he makes me smile. I can't stop thinking about him and I feel like we are at very similar places in our lives. It's just very comfortable and I'm happy with that.

Some days I wake up and wish this would all just go away. I don't want to have to be mature. I want to be a kid. I want to be stupid, immature and make some bad decisions. I want to be able to stay up till four in the morning doing whatever but my body won't let me. I just want my old self back. The person I was five years ago before this all started.

That's all for now. Thanks for listening you always do.

Jess.
These were three really good days. They left me with great memories. It's kind of sad looking back at them. I just really need to have some crazy stupid fun.
Dear MS,

I'm just realizing how screwed up this all is. I look fine to everyone but I have this secret that I'm keeping from the world. That is that I'm suffering from you, good old Multiple Sclerosis. Because of you I look fine on the outside while body is attacking itself on the inside. So far I've only been to two doctors but I'm pretty sure there's going to be more because of you. I've seen a neurologist and an MS specialist. I'm going to have to see a neurologist that specializes in cognitive issues because I failed my memory test. Because of you I will have to give myself injections. This all just really sucks.

Sincerely,
Jess

July 01, 2012

Pool daaays & Hot Tub Nights.
These Lyrics Pulled Me In...

You wake up from your dreamin' and you don't want to face the day
You can't find a reason to think your world will ever change
You can hide beneath the covers
Or you can run outside, head up high and carry on

Life is a roller coaster ride
Time turns the wheel and love collides
Faith is believing you can close your eyes and touch the sky
To shine while you have the chance to shine
Laugh even when you want to cry
Hold on tight to what you feel inside and ride

It brings you up slowly then shoots you like a rocket towards the ground
It twists you and it shakes you before it turns you upside down
You can't see what's around the corner
And you can't look back, so just live it up and feel the rush

Ride by Martina McBride