May 14, 2016

I put living my life on hold for so many years, for so many reasons and at times I didn't even realize I was doing so.

When I was younger I lived my life to try to please my parents, to try to earn their love. I did the things they wanted me to do. I thought some how that this would finally make them happy and then they'd love me.

When I got sick at 16 I put my life on hold again. I didn't go to parties, go out with friends much or date. I pushed guys away because I didn't think a guy could love a girl like me.

One of my biggest fears in dating has been that the guy I end up ultimately falling for won't be able to handle all my baggage. In talking with my therapist about dating and when to tell someone you're seeing that you're sick she brought up such a good point. I'm seeing things in a slightly different, clearer and better perspective.

I have this emotional tie to my baggage (which consists mostly of my health issues in relation to my fear of dating) but it's my emotional tie. I have this movie reel playing in my head everytime I think about having to tell a guy about my health. But the guy that I eventually end up trusting enough to let in won't see the movie reel, he won't feel the emotions I feel as I watch every scene. He won't feel the pain, he only knows what I tell him.

I've always thought my health issues would be enough to make a guy run away. got Only they won't, they are only making me want to run away.

April 03, 2016

Working Through the Past

I want a relationship. I've always dreamed of meeting a guy, settling down, having a bunch of kids. It's what I've always wanted. Although I feel and think I'm ready for that relationship I think there is a part deep down that isn't.

Maybe it's because at 25 I still haven't really dated anyone. I haven't been in a relationship, I haven't had that intimacy. Ultimately, my hope is only to be intimate with the guy I end up with. Even though I don't want to be intimate with a ton of people, I think that's part of the problem. I'm not really sure how or why but deep down I know that's part of it.

The other part is that I want something that I don't think I'm emotionally ready to handle. I have so many ghosts and skeletons in my closet that I need to work through before I can think about being with someone. I'm hoping that therapy will help with that. I don't want to be scared to date, I want to be able to let myself open and be vulnerable to getting to know someone and letting them get to know me. I don't want to turn around and run from someone every time I think something might go somewhere serious.

Maybe I need to just casually date around like my friends suggested. Get to know guys but no strings and no intimacy. I'm not sure why yet but for some reason I'm so scared to let myself have what I truly want in a relationship. Maybe part of me feels like I don't deserve it but I mean I can't deny that the other part of me knows that I do. I've had enough people tell me that I do.

I'm going to do my best to work through the skeletons in my closet and focus on myself for right now so I can hopefully get to the place I feel I need to be in order to pursue the relationship that I so desperately want.

March 12, 2016

I've spent the last 6 weeks dealing with constant dizziness. Laying down, standing up, sitting down, dizzy. Writing lesson plans, grading papers, teaching, walking up and down the rows checking students work, dizzy.

It has been one of the most frustrating symptoms I've had to deal with to date.

I woke up this morning with slight dizziness but it's not awful like it's been. I feel like a human being, I feel functional which isn't something I've been able to say at all in the past 6 weeks. I've been far from that. It's a relief, one that I'm not taking for granted because I don't know how long this is going to last. I want to be optimistic and say that the dizziness is gone but I don't know that for certain. That's the thing I'm relearning you can plan everything but expect nothing. Life is full of uncertainties but that's God's plan. So I'm trying to live my life God's way to the best of my ability.

February 07, 2016

Working my Program

A couple of days ago I was given the ultimate gift, serenity and sanity. Last March, I started attending Al-Anon. I had reached my limit, my breaking point, with my parents. My therapist at the time had suggested Al-Anon and she had never steered me wrong in past. So I researched this Al-Anon thing, that she was talking about and decided to give it a shot. The last few months, I've been beginning to see changes in myself, good changes.

Last month, in my study groups we were working on Step One "We admitted we were powerless over alcohol---that our lives had become unmanageable." Around the time we started this step, I felt as though I could say I was powerless over alcohol but it was everything else that I knew I was powerless over that I had trouble admitted. I still cannot 100% admit that I'm powerless over it all but I'm taking baby steps.

This month started Step Two "Came to believe that a power greater than ourselves could restore us to sanity." The last couple of weeks, I've been on this horrible roller-coaster ride with all the ups and downs. Between dealing with my parents and my current health issues, things were definitely not going well. By this past Thursday night, I was ready to fall apart..the tears pooling in my eyes were oh so present. The insanity was really taking over and once again my life was becoming unmanageable and I had no idea what to do, so I went to a meeting. I was a little early but went in anyway. I was anxious, overwhelmed and seriously contemplating leaving the meeting early.

Today, I'm thanking God that I didn't leave. In the meeting people were discussing sanity and that the opposite of sanity is insanity. Boy was I feeling like I was at the right place at the moment, specially with the insanity that I felt was taking over my being. I heard someone say that the definition of insanity is doing the same thing over and over and expecting different results.

I came to the realization that I was creating my own insanity. I was doing the same thing over and over again and I was expecting things to be different. I was expecting my parents to listen, to understand, to suddenly get me. Somewhere between leaving that meeting and the next morning, I had opened myself up to my Higher Power things were different.

I was able to speak with my father calmly without getting emotional, I said what I had to say for me. Even if my dad wasn't really listening or understanding what I was saying, I got out what I needed to and this left me with a sense of peace. Later that night I came home to my parents fighting and while I got upset about it, I didn't feel like their fighting was my fault like I had so many times before.

I'm seeing progress in myself, slowly but surely I'm working and living my program. My reactions to the situations that keep popping up are changing and I'm feeling serenity afterwards. It's a really nice feeling. I'm so grateful to have the chance to work this program and ultimately having the chance to change. I'm so blessed for this gift, and the spiritual gifts to come.


November 19, 2015

Quarter of a Century

On Wednesday, I turned 25 the world didn't stop spinning it didn't explode it was just like any other day. I've had this picture or vision of what my life would be like at 25 and honestly my life now is nothing like I imagined it to be. But that's my problem...I'm in visioning what I want for my life without taking into consideration what God already has planned for my life. I really have no say in it I'm just living his will for me.

At this point in time I'm not living the life I had expected to live but I'm living the life god wanted me to live. I'm walking the path he has chosen for me and trying not to question it too much. Here's to trying to live out god's will for me to the best of my ability.

November 17, 2015

From Relief to Overwhelmed

When I was diagnosed I gave myself a timeline of how long it should take me to be okay with having MS. I would say in a year from now everything will be fine and back to normal. I learned, although not fast enough, that somethings in life just can't be mapped out. I had to give myself all the time I needed and not rush myself through all the things I was feeling.

I realized the other day that I've gone back to setting timelines for certain aspects of my life, one in particular being my health. I have visits with my neurologist and my MS specialist every 4-6 months. When I saw the MS Specialist this past June, he referred me to a neuro-ophthalmologist. I had thought he had said if the neuro-ophthalmologist found anything that we would start looking at treatments. But after my most recent appointment with him last week that doesn't seem to be the case because although things were found he isn't ready to commit to the diagnosis of MS or put me on treatment. He wants to repeat the MRI in 6 months and then go from there. 

I've been using these 6 month periods as timelines thinking okay so after these 6 months we will look at medications. It wasn't until I took a step back and realized what I was doing that I'm able to stop myself. I'm learning to throw these timelines out the window because ultimately I have very little say in what happens 6 months from now as far as starting treatment is concerned. I think throwing away these timelines is going to be the only way to protect myself emotionally and ultimately protect my sanity. I think it might be the only way I'll be able to come out of my next 6 month appointment and be okay with not starting treatment should that be my doctors decision. 

At the end of my appointment last week I was so ready to throw in the towel and give up. I went in the span of a month from feeling an immense sense of relief to a place with an intense overwhelming confusion and fear. Instead of just throwing the towel, I paused. I went back and reread a post I wrote last month. Last month I wrote about the relief I felt and how glad I was that I didn't give up and that I fought for answers. Even though the overwhelming-ness is back, I'm looking forward to feeling that relief I felt last month once again. I'm not setting time limits, I'm hanging on and looking to God.

I'm learning I have no control over this situation it's within my doctor's hands and God's will for me. Here's to trying to give this situation over to God and not trying to take in back into my control. I'm so thankful for the support system that I do have helping me to get through this very tough situation.

November 10, 2015

Praying for MS

Last week I had the "big three" done, at least that's what the women at my doctors office call them. For those of you who have never heard of the "big three", it's mris of the brain, c spine and t spine.

Yesterday I picked up the reports from my "big three". I read them which is something I do all the time but really shouldn't. The report read "Incidentally noted low-lying cerebellar tonsils 5mm below the foramen magnum equivocal for Chiari I Malformation."

I've been the BIGGEST mess since reading that. Thankfully I met up with a friend last night who got me laughing and distracted me. But last night I went to bed praying that somehow the report is wrong and my brain isn't growing down in a place it shouldn't be. Praying that this illness I have is just MS because I'm not sure how I'm going to handle it being something else. Everyone around me keeps telling me that I'm a fighter. That I'm the strongest person they know that I've been through so much and made it through all of that.

I guess parts of that is true but I don't want to go through this. I don't want to have to be strong. I'm tired of going through all this. I'm tired of fighting for my life. But I also know I have to be positive and there's a reason God chose to give me all this.

I've always felt that he was punishing me and I couldn't understand why. At 24 (almost 25 - next week) I'm still a virgin, I don't drink and I don't do drugs. But maybe this is all apart of God's plan, this is his will for me.

I don't know anything for sure but I have my appointment today with the MS specialist. But if it is Chiari, I'm going to do my best to stay positive, to smile and get through this. I thank God for my friends, the ones I can cry with and the ones who can make me laugh my butt off even when I want to cry my eyes out.